Monday, March 14, 2011

Cystic Fibrosis Explained by Oli and Nush

I came across this short film, made for the Cystic Fibrosis Trust (www.cftrust.org.uk) by Absolutely Cuckoo. It's a fantastic video that helps children with cystic fibrosis understand their condition and explains to other (non-affected) children what Cystic Fibrosis is.



I remember, as a child, struggling to understand what cystic fibrosis was when I was old enough to understand that my oldest brother, Eddie, was diagnosed with CF. I only wish there was this short film that I could have watched.

Thanks for sharing the video, Joanne!

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Monday, March 7, 2011

The Marilyn D. Roman Memorial Fund

It is with gratitude and appreciation that we accept contributions being made in memory of Marilyn D. Roman (Illinois). Before Marilyn's passing (February 28, 2011) she designated the Lungs for Life Foundation to receive contributions in her memory and in lieu of flowers.

We learned Mrs. Roman's nephew, Todd, has cystic fibrosis (CF) and had a successful transplant (TX) in St. Louis -he is now 30 years old. This personal connection to both CF and transplant is why she desired for memorial contributions to be made to the Lungs for Life Foundation.

The Marilyn D. Roman Memorial Fund has been set up to receive contributions that will allow the Lungs for Life Foundation to assist cystic fibrosis individuals and families with both pre- and post- transplant expense needs.

All donations received under this fund will be acknowledged to the Roman Family.
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Obituary Notice:
Marilyn D. Roman, neeGoldstein, beloved wife of Richard L.; loving mother of Daniel (Marcie) Roman and Lisa (Peter) Buss; cherished grandmother of Jake, Max, Nick, Abby, and Ben; sister of Michael (Marge) Goldstein; sister-in-law of Barbara (Alvin) Silvian; adored niece, aunt, grandaunt, cousin, and friend. Private graveside service. In lieu of flowers, contributions may be made to Lungs for Life Foundation, 135 Battle Green Drive, Rochester, NY 14624.

Published in Chicago Tribune on March 1, 2011
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Our deepest condolences to the Roman family at this difficult time.

Did you know Mrs. Marilyn D. Roman? We'd love to hear your fond memories of her. Simply leave a comment to share your thoughts.

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Wednesday, January 5, 2011

Word Décor 'n More: Wall Quotes

UPDATE (6/16/2014): This partner is no longer supporting the Lungs for Life Breathe Blog

Happy New Year!!!

It has been a great start to 2011! With the help of Crystal Allure Jewelry, I'm excited to announce Andrea with Word Décor 'n More has generously offered to donate a portion of the net proceeds from the sale of the Just Breathe wall quote to the Lungs For Life Foundation!

It's a perfect collaboration for both businesses and a special thank you to Andrea for her generosity and support of the Lungs for Life Foundation mission.

How You Can Help
The easiest way to help is simply to spread the word. Tell your friends, family, social network contacts and don't forget to pick one up for yourself!

Here are just a few ideas on using the Just Breathe vinyl wall decal:
-Give as a gift
-Give as a lung transplant anniversary gift
-Adorn your own wall and raise awareness of organ donation and transplant to all your visitors.

Have any more ideas on how to use the Just Breathe wall quote? Please feel free to comment and share your idea(s).

Choose your preferred size and colors over at the Word Décor 'n More website.

Live every moment to its fullest!

Just Breathe...
You'll never live this moment again

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About This Blog

Welcome to the Lungs for Life BREATHE blog. It is here that I hope to keep you informed, provide resources and just stay in touch with asthma, cystic fibrosis, organ donation and transplant communities.

Feel free to contact me with any questions or concerns you may have. Thank you.

Credits

The teal-green lung(s) graphic images were designed and generously donated to Lungs for Life by a young man, James Binegar, who lost his fight with cystic fibrosis while waiting transplant. We deeply appreciate James' work on our graphics and for donating his time to LFL. He will be missed but his memory will live on through our use of his graphics.

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