New Lung Transplant Support Forum
My good friend Joanne Schum (which many of you know already) has recently started a lung transplant support forum with a new host. A double lung transplant survivor herself, she offers a plethora of information and support connections for those affected by cystic fibrosis (CF) and transplant (TX). Here is what she emailed me:
Lung Transplant Support For Patients
Here is the website address:
http://health.groups.yahoo.com/group/LungTransplantSupportForPatients/
Here is the chat site:
http://xat.com/LungTransplantSupportforPatients
The group E-Mail is:
LungTransplantSupportForPatients@yahoogroups.com
I am hoping many people with various lung illness, and their friends and family will check it out and do some emailing. Presently it does not have a chat room, but I am researching this. We will talk illness and LUNG TRANSPLANT, both pre transplant and post transplant issues.
Just a bit of history on me. I am 45 years old, live in upstate New York. I had a double lung transplant, due to CF or Cystic Fibrosis. The transplant was September 12, 1997. I also compiled a book: Taking Flight- Inspirational Stories of Lung Transplantation in 2002. My transplant was performed at University of North Carolina Hospitals - Chapel Hill - Dr. Thomas Egan was my surgeon.
Please don't hesitate to email me: twoluckylungs [at] juno [dot]com -or -luckylungsforjo [at] aol [dot] com.
If you have questions about the site, ideas for the site, if you know a good chat room site, questions on transplant.
Thanks for your patience - this was a long time in the making, after the MSN Group closed. MSN shut down all groups they had.
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